Current Data Requests

The Maine Health Data Organization has, in accordance with Rule Chapter 120: Release of Data to the Public, instituted a process for the purpose of notifying users and providers of health care data when the MHDO receives a request for health data and accepts that request. In addition to sending electronic notification to interested parties and to providers that are responsible for the submission of the data, we provide the summary page of the ten most recent data requests below. If you are interested in seeing requests prior to the last on this page, you will find them here: https://mhdo.maine.gov/dataRequests_Archived.htm

For all data requests, the data providers or other interested parties may submit comments related to the data request to the Executive Director. To be considered, comments must be received by the Executive Director in writing or by electronic notification no later than thirty business days after the initial posting of the data request on the MHDO web site. If the Executive Director determines that (a.) the comments received are of significant enough importance to delay the release of data and/or (b.) additional information is required from the requesting party to address the comments; then the data shall not be released until the additional information has been received from the requesting party and an additional review is conducted by the Executive Director or the MHDO Data Release Subcommittee, as applicable, to ensure that the requesting party conforms to all applicable requirements of this chapter.

The Executive Director will bring all comments received from the data providers and or other interested parties for the release of Level III Data to the MHDO Data Release Subcommittee for consideration.

Individuals who want to opt out of a specific Level III data request may do so by completing this MHDO Choice Disclosure Form no later than 30 business days after the initial posting of the data request. If you opt out of Level III data requests, you will remain opted out unless you choose to opt back in via completion of the MHDO Choice Disclosure Form.

NOTE: If you would like to be notified when new data requests are posted, please email your request.

Request #	Organization and Data Applicant	Consultant	Comment Close Date	Data Requested	Purpose of Request, Benefits to the Citizens of Maine, and Public Reporting Plans	Request Status (Approved or Withdrawn)
2025030301	The Board of Trustees of the Leland Stanford Junior University Michala Welch	N/A	12/19/25	MHDO Level II Q1 2022 – Q4 2023 Custom Extract: Includes Medical Claims, Medical Eligibility, Pharmacy Claims, Pharmacy Eligibility, Practitioner Identifiable Data, MHDO De-Identified Person Directory, and City/Zip, Race and Ethnicity.	This data request seeks Maine Health Data Organization (MHDO) data to understand and quantify the comprehensiveness of care provided to Medicaid patients compared to patients with commercial insurance, and to examine the associations between comprehensiveness and important outcomes for the Medicaid program. We plan to use the MHDO’s all-payer claims database to measure the comprehensiveness of care provided to Medicaid patients and commercial patients. We will estimate and quantify the effects of health system-level, clinician-level, and practice-level comprehensiveness and continuity of care on total costs and utilization, non-elective hospitalizations, and emergency room visits for these populations. Our study will benefit the citizens of Maine by illuminating our understanding of the efficacy of comprehensiveness and continuity of care as a relevant quality measure and support value-based care for the Medicaid population in Maine. Potential publications of our research may include the Journal of the American Board of Family Medicine, the Journal on Quality and Patient Safety, and the Journal of the American Medical Association.
2025092501	ME CDC Eric Fromberg	Public Consulting Group	12/9/2025	MHDO Level II Q1 2018- Q4 2024 Custom Extract: Includes Medical Claims related to Alzheimer’s Disease and Related Dementia (ADRD).	This data request seeks to add additional quarters of MHDO data (Q1 2022 – Q4 2024) to previously approved data request number 2021092901. The Maine CDC is requesting a custom extract of aggregated Maine Health Data Organization medical claims data with the principal diagnoses related to Alzheimer’s Disease and Related Dementia (ADRD). This request for MHDO data will continue to be utilized to change systems, environments, and policies in Maine to promote risk reduction, to improve early diagnosis, to prevent and manage comorbidities, and to avoid hospitalizations related to ADRD. The ME CDC will use the MHDO data to set priorities, to develop public health actions, to address social determinants of health, and to provide support for caregivers who take care of people with dementias. The Maine CDC has been awarded a grant to fund this work all aimed at preventing ADRD and increasing early detection and intervention and improve supports for families coping with ADRD – all of which will improve outcomes for the citizens of Maine who are diagnosed with ADRD and their families.
2025050902	Brown University Christopher Whaley	N/A	12/9/2025	MHDO Level II Q1 2022 – Q4 2023 Custom Extract: Includes Medical Claims, Medical Eligibility, Pharmacy Claims, Pharmacy Eligibility, Practitioner Identifiable Data, MHDO De-Identified Person Directory, and City/Zip, Race and Ethnicity.	Over 70 percent of physicians are now employed by a health care system or corporate entity, including publicly traded and private equity firms. This change in the organization of physician markets can reduce competitiveness of health care markets and increase spending, for both commercial and Medicare patients. Many states are implementing policies that seek to either directly or indirectly regulate provider prices or direct patients towards lower-priced providers. Researchers at Brown University will reprice commercial medical claims from MHDO using Medicare's groupers and pricing algorithms and will conduct analyses of commercial prices as a percentage of Medicare prices for hospitals and hospital systems. We will use these data and methods to examine the impact of provider consolidation on health care prices, quality of care, and access to health services. We plan to: 1. Examine how hospital and corporate ownership leads to changes in intensity of care, quality of care, provider staffing, and prices. 2. Examine how hospital and corporate ownership leads to changes in referral patterns and how these changes interact with site-of-care payment differentials. 3. Test if hospital and corporate ownership leads providers to shift away from public payers of uninsured patients, exacerbating disparities in access to care. 4. Test effects of state regulations. Research products will be peer reviewed publications, white papers, and conference presentations. We will also communicate study findings to Maine policymakers and health care purchasers. Benefit to Citizens of Maine: This project will benefit the people of Maine by providing them with a detailed hospital price report for hospitals in Maine, as well as comparisons among hospitals in Maine versus hospitals in other states. Key audiences for the report will be (1) self-insured employers that participate in the study and that are assessing the reasonableness of the prices they are paying for hospital care, (2) other employers that are struggling with high and rising health care costs and that want to better understand patterns and trends in hospital prices, and (3) policymakers and researchers who are concerned with hospital pricing and price transparency. In addition, this study will examine how changes to the organization of the Main provider delivery system and market trends impact prices, quality of care, and access to services for Maine residents.
2025082001	University of Southern Maine, Catherine Cutler Institute Lindsey Smith	N/A	12/4/2025	MHDO Ad Hoc Request - Level 1 Q1 2021 – Q4 2024 aggregated substance use-related data.	The Office of the Maine Attorney General allocated a portion of its Opioid Settlement Funds to collaborate with the University of Southern Maine to establish the Maine Opioid Settlement Support (MOSS) Center. MOSS aims to build the State of Maine’s capacity to address the opioid epidemic and decrease overall opioid-related morbidity and mortality. The MOSS Center is working to create a Substance Use Vulnerability Index and is seeking aggregated substance use-related data from the Maine Health Data Organization (MHDO) for the 39 counties, cities, and towns that received Opioid Settlement Funds. These data will be used to develop and maintain a Substance Use Vulnerability Index that will aid communities in understanding their substance use-related burdens and capacities and will be utilized to assess the impact of Opioid Settlement Funds over time. The aggregated MHDO data used to develop the index may include MHDO data from the all-payer claims dataset, as well as hospital inpatient and outpatient encounter data. These data sources will capture metrics such as incident myocarditis/endocarditis cases, drug use related skin and soft tissue infections, emergency healthcare visits related to substance use and opioid use disorder (OUD) claims, naloxone prescriptions and hospitalizations involving opioid or other drug overdoses. This project will benefit the citizens of Maine by serving as an evaluation point for the use of settlement funds, assist communities in building capacity related to their substance use burdens, and ultimately inform communities on ways to decrease opioid related morbidity and mortality. Data will be visualized in a public-facing Power BI dashboard hosted on the MOSS Center’s website. Any data from MHDO that is public facing will be appropriately cited and explained to prevent misinterpretation of data.
2025071401	ME CDC, The Maine Immunization Program Kristina Mead	N/A	11/21/2025	MHDO Ad Hoc Request – Q1 2022 through Q4 2024 Adult Vaccinations by Age, County, Anonymized Payer Type, Billing Provider, Service Location and Vaccine Type.	The Maine Immunization Program is requesting MHDO to produce aggregate data on adult vaccinations to help support the financial assessment for LD 93. LD 93 seeks to expand the Universal Childhood Immunization Program to provide immunizations to and cover the costs of recommended vaccines for adults in the State of Maine. This expansion ensures that all Mainers, regardless of age, can access vaccines to protect against preventable diseases while promoting health equity. By broadening access to vaccinations for adults, this initiative will provide preventative care for adults 19-64 years old and increase access points around the State for adult patients. This project benefits the citizens of Maine by reducing barriers adults in Maine face accessing vaccines, including high insurance deductibles, limited access points, and limited vaccines, which leaves this population vulnerable to preventable disease. By broadening this program to include Maine adults we eliminate these barriers, along with vaccine preventable diseases, ensuring that all recommended vaccines are readily available to every adult in Maine.
2025012203	Abound Health Jacob Johnson	N/A	11/21/2025	MHDO Ad Hoc Request – Level I CY 2023 Claims Data for Home and Community Services	Abound Health is focused on expanding access to high-quality services for individuals with intellectual and developmental disabilities (IDD) by offering comprehensive, person-centered services. They provide a full array of Innovations Waiver Services, Medicaid B3 Services, Medicaid State Funded Services, plus Private Pay and Insurance Options. They are requesting aggregated claims data from the Maine Health Data Organization (MHDO) for Calendar Year 2023. The request focuses on services provided under Home and Community Services for adults with intellectual disabilities and autism spectrum disorder. Specifically, they are requesting claims by providers for the following CPT Codes: H2014, H2015, H2016, T2020, H2021, T2021, H2023, H2025, T2019, T2024, and H2026. The purpose of this request will help them to assess gaps in care, identify areas of need, and better understand how providers are serving individuals across the state of Maine. Their goal is to support efforts that improve service availability, continuity of care, and overall outcomes for Maine residents with IDD.
2025080402	State of Maine Office of Affordable Health Care Katherine Senechal	Wakely an HMA company	11/05/2025	MHDO Level II Q3 2025 – Q2 2026 Inpatient and Outpatient Hospital Encounter Data, Medical Claims, Medical Eligibility, Pharmacy Claims, Pharmacy Eligibility including City/ZIP, Race & Ethnicity, Practitioner Identifiers, Payer Name/ID, De-identified Person Directory and Hospital Healthcare Quality Data (CMS Measures)	This data request seeks to add additional quarters of MHDO data (Q3 2025 – Q2 2026) to previously approved data request number 2024082001. In addition, Wakely will be added as a data consultant to support data analysis to the previously requested CY 2024 Medical Claims and Eligibility data. In 2021, the Maine legislature created the Office of Affordable Health Care (OAHC) when it enacted P.L. 2021 Chapter 459, Section 3. Among other duties, the establishing legislation directs the office to analyze health care cost growth and spending trends, including correlation to quality and consumer experience, and to develop proposals to improve the affordability, quality, and efficiency of health care in Maine. This project builds upon the previously authorized MHDO data request 2024020502 and seeks to further analyze trends in payor and provider health care spending, health care consumption, and the costs of providing health care using MHDO data beginning in 2017 through the most current data available from MHDO. This request allows OAHC to directly access MHDO data via the NORC Data Enclave. The Office, mandated to identify drivers of health care costs and quality, requires Payer Name/ID information to understand differences in healthcare payments and coverage, allowing for analysis of policy impacts on specific payors and connecting observed trends to policy decisions, demographics, and other factors such as health insurance coverage for services. This project will advance the aims of the office by offering data driven insights into drivers of health care spending, obstacles to affordability, and care quality for Maine residents by creating summaries of aggregated data in proactive or responsive work products for the Maine legislature and other stakeholders. These products may include annual reports, legislative inquiries, and presentations for the public and the Advisory Council on Affordable Health Care.
2025041501	Sg2 Tanya Chin-Fatt	N/A	10/17/2025	Q2 2024 – Q2 2026 MHDO Level II Hospital Inpatient Encounter Data including City/ZIP	This data request seeks to add an additional year of MHDO data to previously approved data request number 2023072701. MHDO’s hospital discharge data will be used in Sg2's online analytics tools to explore historical trends and develop demand forecasts by clinical area and geography; allowing several Maine Hospitals and Hospital Systems working with Sg2 to project and meet future demands by determining the appropriate allocation of resources to improve both the quality and availability of health care in the communities they serve. Sg2 applies proprietary CARE groupings to quantify baseline volumes, then applies its Impact of Change model to project demand for health care services over the next decade, examining the cumulative effects and interdependencies of key impact factors driving change in utilization in major Maine markets. Using both disease-based and MS-DRG–based analyses, the forecast provides a comprehensive picture of how patients will access services along the continuum of care. The resulting output can be visualized at the service area, zip code, service line, disease, and procedure levels which health systems serving Maine residents use to develop their operational and strategic plans.
2025042902	University of Kentucky Chris Delcher	N/A	8/26/2025	MHDO Level II Q1 2022 – Q4 2023 Custom Extract: Includes Medical Claims, Medical Eligibility, Pharmacy Claims, Pharmacy Eligibility, Practitioner Identifiable Data, City/Zip and Race and Ethnicity.	The aim of this study is to compare the on-label prescribing of psychotropic medications for individuals with autism spectrum disorder (ASD) to the general population (referred to as “non-ASD controls”). Individuals with ASD often experience co-occurring conditions at higher rates than the general population, including attention deficit hyperactivity disorder (ADHD), depressive disorders, anxiety, bipolar disorder, and epilepsy; and it is known that patients with ASD are vulnerable to overprescribing to treat challenging behaviors. By examining medication utilization patterns in the MSDI data, we can investigate differences in treatment approaches and identify areas for improvement in the management of ASD and its co-occurring conditions for Maine residents. Patients with ASD will be identified based on specific diagnostic criteria, including inpatient and outpatient claims with an ASD diagnosis and continuous enrollment in medical and pharmacy benefits. Propensity score matching will be used to create a 1:5 control population without ASD, ensuring demographic similarity between groups. On-label prescribing for various medication types, including ADHD medications, antidepressants, anxiolytics, antiepileptics, and mood stabilizers/antipsychotics will be the primary outcome. On-label prescribing will be defined as patients with a diagnosis followed by a respective prescription fill within 7 days. Difference in number of medication types will be examined between the ASD and control group using negative binomial regression. Our project is guided by a team of research and clinical experts convened from the state. On-going meetings will help ensure that analyses and research questions are relevant to improving health outcomes in Maine. By fostering a deeper understanding of these prescribing patterns, healthcare providers in Maine can better tailor treatment strategies to meet the diverse needs of individuals with ASD, ultimately improving their overall quality of life.
2025032502	University of Utah Kim Jaewhan	N/A	8/26/2025	MHDO Level II Q1 2022 – Q4 2023 Custom Extract: Includes Medical Claims, Medical Eligibility, Pharmacy Claims, Pharmacy Eligibility, Practitioner Identifiable Data, City/Zip and Race and Ethnicity.	This project aims to provide valuable insights into the effectiveness of bariatric surgery versus weight loss medications among Maine residents. The Maine Health Data Organization (MHDO) data will play a crucial role in achieving the project's objectives by providing comprehensive information on patient demographics, clinical characteristics and allowing for a detailed comparison between individuals who undergo bariatric surgery and those who receive weight loss medications. The project will examine four key areas: 1.) Differences in characteristics of subjects undergoing bariatric surgery versus weight loss medication treatment. 2.) Differences in the incidence of mental disorders following bariatric surgery compared to weight loss medication prescriptions. 3.) Comparison of all-cause and diabetes-related ER visits and hospital admissions following bariatric surgery versus weight loss medication prescriptions. 4.) Comparison of total healthcare spending between subjects who underwent bariatric surgery and those who received weight loss medication prescriptions. This research will benefit the citizens of Maine by providing insight into healthcare utilization, cost comparisons, and economic impacts of bariatric surgery and weight loss medications. Findings will help Maine policymakers and healthcare organizations develop cost-effective obesity management strategies. We plan to publish 4 papers using MHDO data in open access journals. As part of our dissemination plan, we will share all key findings and reports with the Maine Quality Forum (MQF), a state agency that plays a vital role in informing public health policy in Maine. This will facilitate timely dissemination and use of our research to support data-driven policy decisions aimed at improving healthcare delivery and population health in Maine. By bridging clinical evidence with policy application, this work will enhance healthcare practices, optimize resource use, and promote healthier communities throughout Maine.
2025051901	Northern Light Health Jose Alicea-Santiago	N/A	7/30/2025	MHDO Level II Q1 2025 – Q4 2025 Hospital Inpatient and Outpatient Encounter Data, including City/ZIP, Race & Ethnicity, Practitioner Identifiable data and Integrated Cancer-Incidence Registry Data.	This data request seeks to add an additional year of MHDO data to previously approved data request number 2024041901. Northern Light Health (NLH) will continue to use the MHDO’s inpatient and outpatient hospital data to support its member organizations and their planning efforts to advance initiatives that are important to the hospital system, the people of Maine, and the State’s healthcare system. To improve the health of the people and communities served, NLH will continue to analyze patient origin and demographics, locations of healthcare services and providers, healthcare services utilization rates and volumes and healthcare services provided, including diagnoses and procedures. The benefits to the citizens of Maine include optimized resource allocations, better planning by understanding care delivery factors like distances traveled by patients, and refined program planning for specific age groups. Race and ethnicity data addresses gaps around health care equity. The MHDO’s integrated Cancer-Incidence Registry data informs developments in Oncology services that are especially important given reported increases in overall cancer incidence and among younger age groups. Provider identification data supports decision-making for future placement of services and/or collaborative efforts.